From the moment Martha and her husband, John, accidentally conceived their second child, all hell broke loose. They were a couple obsessed with success. After years of matching IQs and test scores with less driven peers, they had two Harvard degrees apiece and were gunning for more. They'd plotted out a future in the most vaunted ivory tower of academe. But when their unborn son, Adam, was diagnosed with Down syndrome, doctors, advisers, and friends in the Harvard community warned them that if they decided to keep the baby, they would lose all hope of achieving their carefully crafted goals. Fortunately, that's exactly what happened.
By the time Adam was born, Martha and John were propelled into a world in which they were forced to redefine everything of value to them, put all their faith in miracles, and trust that they could fly without a net. And it worked. Expecting Adam captures the abject terror and exhilarating freedom of facing impending parenthood, being forced to question one's deepest beliefs, and rewriting life's rules.
From the National Book Award-winning author of the "brave ... deeply humane ... open-minded, critically informed, and poetic" (The New York Times) The Noonday Demon, comes a book about the consequences of extreme personal and cultural differences between parents and children.
From the National Book Award-winning author of The Noonday Demon: An Atlas of Depression comes a monumental new work, a decade in the writing, about family. In Far from the Tree, Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. Solomon's startling proposition is that diversity is what unites us all. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.
All parenting turns on a crucial question: to what extent parents should accept their children for who they are, and to what extent they should help them become their best selves. Drawing on forty thousand pages of interview transcripts with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges. Whether considering prenatal screening for genetic disorders, cochlear implants for the deaf, or gender reassignment surgery for transgender people, Solomon narrates a universal struggle toward compassion.
Many families grow closer through caring for a challenging child; most discover supportive communities of others similarly affected; some are inspired to become advocates and activists, celebrating the very conditions they once feared. Woven into their courageous and affirming stories is Solomon's journey to accepting his own identity, which culminated in his midlife decision, influenced by this research, to become a parent. Elegantly reported by a spectacularly original thinker, Far from the Tree explores themes of generosity, acceptance, and tolerance - all rooted in the insight that love can transcend every prejudice. This crucial and revelatory book expands our definition of what it is to be human.
Inspired by the author's son, the story of a boy with Down syndrome who goes on a superhero's journey to New York City and learns what truly makes him unstoppable.Jamie likes to pretend he's a superhero. With his cape and gadgets, he feels like he can face anything. When his picture is chosen to be shown in Times Square for the NDSS Buddy Walk?, his family travels to New York City to see it. As he makes his way through the loud, busy, unfamiliar city, Jamie discovers that he doesn't have all his special tools. But he soon realizes that it isn't what he wears or the gadgets he uses that make him brave -- it's who he is inside.This uplifting story includes an author's note with information about Down syndrome.
Rita: Do we have any boxes? Mom: Sure, Why do you need a box? Rita: My teacher says I have to think outside the box! Approaching her daily life with enthusiasm and a dry sense of humor, Rita rides public transit to her job working at a university coffee shop. She takes yoga and folk dance classes and enjoys drama and music at a day program, and she continues to practice using sign language. Rita's great passion is making art. Here she shows her love for the world in fun and beautiful works of art.
Joey Moss first became known to many Canadians because of his work with the NHL Edmonton Oilers hockey team. Joey loved connecting with people. Whether he was singing "Oh Canada" on a jumbotron screen at a hockey game, welcoming a new friend with a playful wrestling match, or dancing on a runway for a charity fashion show, Joey loved making people feel good. But his impact and influence started long before he joined the Oilers.
Joey was born with Down syndrome at a time when many children like him were institutionalized. Instead, Joey lived at home, surrounded by his supportive family who was determined that he should receive the same opportunities as others. From this loving environment grew a caring, energetic man who went on to show the world that people like him could do many things and contribute greatly to society.
When Laura Estreich is born, her appearance presents a puzzle: does the shape of her eyes indicate Down syndrome, or the fact that she has a Japanese grandmother? In this powerful memoir, George Estreich, a poet and stay-at-home dad, tells his daughter's story, reflecting on her inheritance --- from the literal legacy of her genes, to the family history that precedes her, to the Victorian physician John Langdon Down's diagnostic error of "Mongolian idiocy." Against this backdrop, Laura takes her place in the Estreich family as a unique child, quirky and real, loved for everything ordinary and extraordinary about her.
Bloom is an inspiring and heartfelt memoir that celebrates the beauty found in the unexpected, the strength of a mother?s love, and, ultimately, the amazing power of perspective. The author of the popular blog Enjoying the Small Things?named The Bump?s Best Special Needs Blog and The Blog You?ve Learned the Most From in the 2010 BlogLuxe Awards?Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome.
A powerful and moving new novel from an award-winning, acclaimed author: in the wake of a devastating revelation, a father and son journey north across a tapestry of towns
When a widower receives notice from a doctor that he doesn't have long left to live, he is struck by the question of who will care for his adult son - a son whom he fiercely loves, a boy with Down syndrome. With no recourse in mind, and with a desire to see the country on one last trip, the man signs up as a census taker for a mysterious governmental bureau and leaves town with his son. Traveling into the country, through towns named only by ascending letters of the alphabet, the man and his son encounter a wide range of human experience. While some townspeople welcome them into their homes, others who bear the physical brand of past censuses on their ribs are wary of their presence.
When they press toward the edges of civilization, the landscape grows wilder, and the towns grow farther apart and more blighted by industrial decay. As they approach "Z," the man must confront a series of questions: What is the purpose of the census? Is he complicit in its mission? And just how will he learn to say good-bye to his son? Mysterious and evocative, Census is a novel about free will, grief, the power of memory, and the ferocity of parental love, from one of our most captivating young writers.
Four years after her husband Richard's death, Cate Morris is let go from her teaching job and unable to pay rent on the London flat she shares with her son, Leo. With nowhere else to turn, they pack up and venture to Richard's ancestral Victorian museum in the small town of Crouch-on-Sea.
Despite growing pains and a grouchy caretaker, Cate begins to fall in love with the quirky taxidermy exhibits and sprawling grounds, and she makes it her mission to revive them. But threats from both inside and outside the museum derail her plans and send her spiraling into self-doubt. As Cate becomes more invested in Hatters, she must finally confront the reality of Richard's death - and the role she played in it - in order to reimagine her future.?
In this inspiring memoir, David Egan tells his own story, authentically describing a life of maximizing his abilities, as he advocates for himself and for all other people with disabilities. This book is yet another first in a life that has seen many firsts, a life buoyed by an optimistic perspective that refuses to be limited by stereotypes and the low expectations of others
What would your life look like if you measured success by your improvements instead of your victories Chris Nikic, the first person with Down syndrome to ever complete an IRONMAN triathlon, inspires others to achieve their goals by getting 1 percent better every day.
From the moment Chris Nikic was born, his parents knew he could achieve anything he set his mind to do. So when Chris became involved in triathlons with the Special Olympics, his dad took on the role of coach and encouraged Chris to aim even higher. Together, they set their sights on making history - Chris becoming the first person with Down syndrome to complete an IRONMAN triathlon.
A business coach and entrepreneur, Nik Nikic says the 1% Better mindset has helped Chris achieve so many of his goals, and in this book they share how the underlying principles of the 1% Better system can help others pursue and achieve their dreams.
This vivid portrait of contemporary parenting blends memoir and cultural analysis to explore evolving ideas of disability and human difference. An Ordinary Future is a deeply moving work that weaves an account of Margaret Mead's path to disability rights activism with one anthrop
It can be hard to be different-whether because of how you look, where you live, or what you can or can't do. But wouldn't it be boring if we were all the same? Being different is great! Being different is what makes you YOU.
This inclusive and empowering picture book from Sofia Sanchez-an 11-year-old model and actress with Down syndrome-reminds readers how important it is to embrace your differences, be confident, and be proud of who you are. Imagine all of the wonderful things you can do if you don't let anyone stop you! You are enough just how you are. Sofia is unique, but her message is universal: We all belong. So each spread features beautiful, full-color illustrations of a full cast of kid characters with all kinds of backgrounds, experiences, and abilities.
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